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Missed Phone call

Heather called last night when we were down the street at a Birthday party. We had a good time down there, but didn't get home until 11 or so, and Heather had called at 8. She left a message that they have NO new info on Joe's condition. They have not been able to get the insurance company to approve for him to take an MRI to see if the cancer is in his brain or his liver. How can they Possibly not have approved it? Are they just hoping he will be so sick by the time they get the diagnosis that they won't have to pay for expensive treatment because they want him to die, as it would be cheaper? That is the only thing that makes any sick sense. Treatment can be long, arduous and costly. I am going to call and tell them to call their insurance commissioner in Fla, and get them involved in the situation.

Last night I had an emotional breakdown. When I realized I missed Heather's call, and the insurance company is giving them a runaround, I felt physically sick. I sat on the sofa, in the dark, with Amber, and cried for a half an hour. It is the deepest sobbing I can remember in many, many years, probably back to when my dad, an Atlanta policeman, died when I was 19 years old. He was only 42, younger than I am now. Joe is only 34. If there was Any way that I could Trade with Joe, and let me have it instead, I would. I prayed to God, in his Wisdom, to switch us. I would do Anything to make my little girl happy. I have had dreams lately of Heather losing Joe. They are so real, so sad. So Desperately, heart-wrenchingly, Sad. I just don't want to see her and Joe go through this. I have done many of the things I hoped to do in my life, been to wonderful vacation spots, loved my husband for 30 plus years, had two lovely children. I could switch...if it was God's plan for me, I would willingly take it on.

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35 comments found.
Anonymous
Posted by Anonymous
9 months ago
This comment has been removed.

Lynn C.
Posted by Lynn C. (MEKOMO)
9 months ago
Even if you could switch with Joe, your daughter will still be unhappy. we need to all focus all prayers. hang in there

daryl b.
Posted by daryl b. (darylob)
9 months ago
jules go to your church sometimes they can help financially

9robin58
Posted by 9robin58
9 months ago
I would just go do the MRI.Later I would raise a law suit if he has a serious problem or even if he doesn't..It is all documented right?It is not worth the pain and suffering you all are going through.I don't know if there is a big cost difference to where you and I live but I had an MRI here about 6 months ago and it cost about 4,500.00.People should not have to go through this insurance crap when lives are on the line.

Kathleen H.
Posted by Kathleen H. (Draken)
9 months ago
My friend that has lung cancer also had a few problems with her insurance. The docter that was recommended by her surgery doctor (Dr. VanCutie, as he is know) was not covered. She asked her support group for recommendations and she just met with both Drs this week. One is a genius but doesn't wash his hands, the other washes his hands but doesn't have really helpful staff. What are you going to do?

Check around and see if there is a Gilda's Club anywhere close to you. Their website is www.Gildasclub.org I know two people who have found them to be extremely helpful.

Julie
Posted by Julie (zipnjulie)
9 months ago
Gilda, as in Radner? She was my favorite on Saturday Night Live. I will check this out too. I appreciate all the help and suggestions, and I am so sorry your friend is going through similar problems. It seems to be running rampant all over, doesn't it?

Kathleen H.
Posted by Kathleen H. (Draken)
9 months ago
Yup - Gilda's Club is named after Gilda Radner. She died of cancer but her friends helped create this group that offers support to others with all types of cancer. What a wonderful tribute.

It's a bummer anyone has to go through cancer.

You mention that Joe was at Ground Zero. If he hasn't already looked into it then he should talk to someone about that. I know they are doing studies about cancer related to Ground Zero - he may qualify for some type of treatment though that.

Julie
Posted by Julie (zipnjulie)
9 months ago
Thanks. I checked out the site and really love it. I sent it to Joe and Heather. There is one near them in Fort Lauderdale. That was really nice of you. We appreciate it...

Donna R.
Posted by Donna R. (dojero)
9 months ago
Hang in there, keep fighting....we're behind you...if an e-mail innundation by your zoo-too pals would help, just let us know!! Give us Names and Addresses and numbers! We can all be Lions together.

Julie
Posted by Julie (zipnjulie)
9 months ago
Thanks Donna. I have left a message for them to call me, to see if any of these ideas might work. I wonder if this is from being exposed to all the stuff in the air in NYC on Sept 11th...he was right at Ground Zero...

Donna R.
Posted by Donna R. (dojero)
9 months ago
Could be---an in-law of mine who was involved in the three-mile island clean-up has been dealing with cancer all these years later...you just never know about these things.

Tbird D.
Posted by Tbird D. (Tbird)
9 months ago
Julie, I don't know the scope of the problem (I'm not a frequent reader or poster), but when I saw that you mentioned possible exposure in NYC at Ground Zero on 9/11, I thought I might suggest these websites:
www.nycosh.org
www.nyc.gov

If you or your family suspect this is in any way related to what happened that day, it's worth contacting someone to see what recourse he has in terms of health coverage. As Donna mentioned, my brother-in-law developed cancer some 20 years after being involved in the Three Mile Island cleanup--and it's the kind of cancer one would almost certainly have after being exposed to this kind of environment, yet there's no way of making the connection after all this time. Your case is likely to be very different, and someone w/ the 9/11 organizations may be able to help you knock some sense into that insurance company.

Best of luck, and all good wishes go with you & your family. :-)

kavykeeper
Posted by kavykeeper
9 months ago
Julie, they need your love as much as everything else. I'm happy to see others are offering ideas and prayers. I wish there was more I could do to help. I will continue to pray. That's all I can offer.

Julie
Posted by Julie (zipnjulie)
9 months ago
Thank you, Kathy. Prayers are Perfect, and I appreciate the kind thoughts and prayers. I really do.

maria h.
Posted by maria h. (mariamoose)
9 months ago
Can't you find a doctor that will treat Joe pro bono?

Julie
Posted by Julie (zipnjulie)
9 months ago
I live in Ga, and they live in South Florida. I wondered about just paying for the MRI out of pocket, and fighting them on it afterwards.

maria h.
Posted by maria h. (mariamoose)
9 months ago
Oh Jewels,I just feel so helpless! Contact your congressman,you call their insurance company and see why they aren't doing anything.Which insurance company is this?

Julie
Posted by Julie (zipnjulie)
9 months ago
Blue Cross/Blue Shield. They are also stopping payment on my Elmiron Bladder medicine. I have to pay over $200 per month for that one only! These are two different policies, but the same bad practices!

cherries33
Posted by cherries33
9 months ago
Jewels, I've heard of insurance companies doing exactly that. I think your suggestion of calling the insurance commissioner is a good idea. I hate to say it but getting a lawyer involved may not be a bad idea either. It sounds like hitting them in the wallet may be the only thing they care about. I'm so sorry you are going thru this.

Julie
Posted by Julie (zipnjulie)
9 months ago
Thanks, Cheryl. Insurance companies hate 2 things: Paying large claims, and dealing with the government when they have performed wrongly...So we will need to hit them with both. I know that Amy, Joe's mom, is going down to FL next month. She felt like he would be well into his chemo by then...But who are we to the docs and insurance companies? Pains in the neck, and money signs for each...

Lucy B.
Posted by Lucy B. (Lbrant)
9 months ago
Maxxiebrown I couldn't have said it any better. Julie you must hang in there for Heather and Joe. Heather needs you now more than ever.

Insurance , keep beating at them. Call ever day to get that MRI done. Call the case manager. Thats what we did with my husbands MRI. I told them I would be their worst nightmare come true if something didn't get done soon.

Your the Mommy Lion !!!

Julie
Posted by Julie (zipnjulie)
9 months ago
Thanks, Lucy. I will be Mommy Lion tomorrow, and we will contact the case manager. I just tried fighting with my prescription insurance to have them continue to pay for my Elmiron for my bladder, like they have done for the last 5 years. Suddenly, BCBS placed it on their non-preferred list, and I have to pay $200 per month as my share for the one Rx...Last year it was $40...And there is no generic, nothing similar. I guess between Zip and the loss of the prescription, I am feeling very down. I wish I could snap out of it...Maybe tomorrow.
roar.

Lucy B.
Posted by Lucy B. (Lbrant)
9 months ago
Julie I hope you are feeling a bit better today. I hear you on the insurance bit. My prescription for Celexa went on to the non preferred list. It just kills me when some idiot is sitting up in some office deciding what medication is better for me. My mom has problems with generic drugs and when they tried to switch one of her medications to generic she had major problems. When she told the insurance company they insisted that she mistaken because thier is supposedly no difference between the two. The doctor sent them the report he had after he saw her on the generic versus the non generic and they agreed to pay for the non generic. Its crazy what you have to do to get the right treatment and medications.

MaxxieBrown
Posted by MaxxieBrown
9 months ago
Julie,

You have to hang in there and fight for your those kids. They need your wisdom and knowledge to help them get through this. No matter how much you want to give up, you can't. They need you now more than ever.

As far as the insurance company goes. Do whatever you have to to put a fire under their a$$. Don't let them push you or those kids around.

Many prayers are with you at this time from my whole family.

Kris & the gang


Julie
Posted by Julie (zipnjulie)
9 months ago
Thanks Kris. I will call tomorrow and talk to Joe. We can discuss the situation with the insurance then. Today, I feel like I will cry if somebody says "boo!" I know they need me, and I need them. Heather is usually off on Tuesdays, so they may have some news for me when I call. But, at least Joe is maintaining his wonderful sense of humor. He is such a funny person...I wish you could all meet him, and see the fantastic man that Heather found...I just want him to be ok...I just wish I could fix it.

Carol L.
Posted by Carol L. (langsford)
9 months ago
Julie, this is very hard for you and for your family. You are feeling so much pain now and it is understandable. You are a strong person and that strength is needed now by your Daughter. You cannot give up and assume the worst is yet to come. You have to take each day at a time and focus on the NOW it is the only way you will be able to handle this. I know is sounds very hard to do but your family joining together will give Joe the strength he needs to go forward in what ever treatment they find for him.

Julie
Posted by Julie (zipnjulie)
9 months ago
Thanks Carol. I appreciate your words. I am just having a bad few days, I guess. Yesterday I was much better, but today it's raining and dreary, and nobody is here but me and the babies. I can't decide if it would be better to go watch a sad movie, and make myself cry, or a comedy, and try to feel happier. I just feel so sad. I can't wait for Heather to call me with news, but I dread the call at the same time. Joe is emailing me lots of funny emails, and that had me pretty cheerful till I went out in the rain to feed the horses. Zip was acting out, bucking and kicking, and it was so muddy and messy in the pasture to the barn. Zip hates rain, and he didn't wait inside the barn for me, he came to greet me, then acted out anyway. And that was the final straw for today. Maybe tomorrow will be better... Thanks for listening...

Carol L.
Posted by Carol L. (langsford)
9 months ago
No problem - I know this is very difficult for you and sitting and waiting is not easy either. We are always here to listen and help in anyway we can..

Take Care - Julie

Anonymous
Posted by Anonymous
9 months ago
This comment has been removed.

Julie
Posted by Julie (zipnjulie)
9 months ago
Thank you Susan. It is such a powerless feeling, so far away from them physically, and desperate for news, and the start of the treatment. Can insurance companies be charged with malpractice for not approving something in a life and death situation? If not, they should be. The cruelty behind this is astounding. I can't imagine how they could justify it even to themselves. I keep wondering how much an MRI would run, and although it's expensive, it isn't astronomical.
I really appreciate the Prayers and support from my Z2 friends. I need something strong to lean on, I feel like I am standing in quicksand. And holding the world on my shoulders.

Anonymous
Posted by Anonymous
9 months ago
This comment has been removed.

Julie
Posted by Julie (zipnjulie)
9 months ago
I know. And I hurt when she hurts.

Anonymous
Posted by Anonymous
9 months ago
This comment has been removed.

daryl b.
Posted by daryl b. (darylob)
9 months ago
jules you do what ever you have todo to get that permission from the ins co these ae your kids and i know yu will do everything you can to protect them

Julie
Posted by Julie (zipnjulie)
9 months ago
I will. We have to do something...

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